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Girl Begins To Form A Second Skeleton And 18 Years Later It Has Turned Her Into A ‘Hu - Printable Version +- Forums (http://contripeople.com) +-- Forum: Retired Forums (http://contripeople.com/forumdisplay.php?fid=78) +--- Forum: Retired Forums. Please Make Your Post Within The 3 Forums In General Discussion (http://contripeople.com/forumdisplay.php?fid=49) +---- Forum: Other Stories (http://contripeople.com/forumdisplay.php?fid=44) +---- Thread: Girl Begins To Form A Second Skeleton And 18 Years Later It Has Turned Her Into A ‘Hu (/showthread.php?tid=18199)

Girl Begins To Form A Second Skeleton And 18 Years Later It Has Turned Her Into A ‘Hu - Gimbiya - 06-11-2019 Girl Begins To Form A Second Skeleton And 18 Years Later It Has Turned Her Into A ‘Human Statue’ Carli Henrotay of St. Louis was always an active and adventurous toddler. She loved to swim, run and play soccer. Then she turned five years old and life was never again the same. One day, doctors noticed Carli’s big toes were shorter than her other toes. This was because she was missing certain bones, which tipped doctors off to a very rare and progressive disease. Carli became one of approximately 800 people diagnosed with fibrodysplasia ossificans progressiva (FOP). There is no cure for FOP and patients have a life expectancy of around 40. FOP is often referred to as “Stone Man Syndrome” because it causes muscle and tissue to change into bone. Over time, these new bones form a “second skeleton” that greatly inhibits one’s mobility. Since her joints are typically in a locked-up state, Carli is unable to raise her arms above her head, bend at the waist or stand on two legs. According to Barcroft TV, “her back is ‘a sheet of bone,’ she uses a wheelchair to get around and she lives in a constant state of physical pain and fragility. Even the most minor injury can cause extra bones to form and grow inside her. Carli is now 23 years old. It’s incredible to see how she has learned to adapt to her limitations and make adjustments so she can live as active and normal a life as possible.